Rebecca Callaghan faced a challenging pregnancy in 2012 due to excess fluid around the fetus, leading doctors to induce labor early. Little Matilda’s condition wasn’t evident until half an hour after birth, when a large blue mark appeared on her face, initially mistaken for a bruise.
Soon after, doctors diagnosed Matilda with Sturge Weber’s syndrome, a rare neurological skin disease causing paralysis, learning difficulties, and seizures. Her health deteriorated rapidly, necessitating transfer to Adler Hey Children’s Hospital in Liverpool.
Despite the initial joy of her birth, Matilda’s parents faced uncertainty about her survival. Compounding their worries, they learned she had two heart defects. Matilda underwent surgery successfully but began laser treatment to address her prominent birthmark, a process expected to span up to 16 years.
Amidst public scrutiny and hurtful assumptions, Matilda’s parents defended her resilience and spirit. Despite her challenges—almost blind and unable to walk without assistance—Matilda remains cheerful and determined, supported by her family’s unwavering pride and love.
Now 8 years old, Matilda’s family seeks community support for a new wheelchair through crowdfunding, aiming to enhance her mobility and quality of life.
